Nov
10
Congenital Heart Disease: Broken Hearts of the Big Bend
By
Broken Hearts of the Big Bend is a circle of support for families affected by congenital heart disease. Founded on the premise “a good exercise for the heart is to bend down and help another up,” BHBB’s mission is simple: Families reach out to other families affected by congenital heart disease and offer comfort, hope and understanding. BHBB connects families to share experiences and give support. They celebrate their children’s lives and triumphs. www.myspace.com/bigbendbrokenhearts…
8 Comments
November 10th, 2009 at 6:18 am
What a touching video. I had a baby girl in 2005 with CHD. She had one surgery, and was doing pretty good, but needed more. She died one month to the day she was born. I was on medical, and miles from home. They stopped my medical cause I couldnt get home for my yearly review, so the hospital stopped treating my baby. Isnt that wonderful?? : (
November 10th, 2009 at 7:06 am
I am a 42 year old Congenital Heart Patient..
My defect is called D-Transposition of The Great Vessels. I am seeking all who have succeeded age 40 without a heart transplant.
I would like to know their success story, and the quality of life for which they have lived. I have been told, I am the oldest living, in the United States, with this particular Heart Defect. Is this true????
I accept any assistance available, in finding others like myself. Time is of the essence.
November 10th, 2009 at 7:23 am
This is a great video- I saw it tonight for the first time. Its so strange to see so many other children in the hospital- just like Kenley was. I love at the end how the video shows how healthy they all are! Thank you! Garrett (Kenley’s Mom)
November 10th, 2009 at 7:53 am
my child to was born with CHD great video
November 10th, 2009 at 7:57 am
My daughter, Adelle, was born with a CHD, HLHS. She passed away, but her message beats in my heart every day. Keep spreading awareness, for many of these babies/ children it is their only hope.
November 10th, 2009 at 8:46 am
Great video! My daughter was born with a CHD so this touches me deeply. Thanks for sharing
November 10th, 2009 at 9:35 am
Karen, just perfect! Tears! Ahh!
See you tonight:)
Thank you for all you do!
Penny
November 10th, 2009 at 9:43 am
Love the Vid